Living with a sibling diagnosed with autism spectrum disorder : an interpretative phenomenological analysis
Dongola, Edzani Onica
This qualitative study explored the experiences of individuals living with a sibling diagnosed
with Autism Spectrum Disorder (ASD) and how these individuals make meaning of this
experience. The data for this study was collected from five (5) individuals between the ages of
12 and 19, who shared their experience of living with siblings diagnosed with ASD. The data
was analysed using the interpretative phenomenological analysis method (IPA). I conclude that
although living with a sibling diagnosed with ASD is a challenging experience, the way one
makes meaning from the experience contributes greatly to their interpretation of their experience
thereof; and therefore, making it a positive experience. The participants in this study showed
great maturity and resilience. The findings of this study will be useful to parents, professionals
and those who engage with individuals living with a sibling diagnosed with ASD.
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